#MyastheniaGravis remains underdiagnosed and often mistaken for other diseases. During #MyastheniaGravisAwarenessMonth, we’re highlighting symptoms to be aware of for yourself and loved ones. With no current cure for MG, we’re proud to be developing our lead program Descartes-08, currently in a Phase 2b trial: https://bit.ly/49X50wb
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🔸 #ClinicalResearcher 🔸 #ProjectManager 🔸 #ClinicalTeamLead 🔸 #LeadCRA 🔸 #CRA 🔸 #ClinicalTrial 🔸 #Monitoring 🔸 #Management 🔸 #Fortrea 🔸 #HBA 🔸 #HBAAmbassador
#RareDiseaseDay serves as a reminder of the progress made in understanding and treating rare diseases. We've seen remarkable advancements recently and we're moving towards a future where no disease is too rare to be ignored. Let's keep working towards a world where everyone, regardless of their condition, has access to life-changing treatments. Together, we can turn this day of awareness into a beacon of hope for millions around the globe. Read the whole article: https://lnkd.in/ecuMYJxY #RareDiseases #ClinicalTrials #ClinicalResearch #ShareYourColors #ShowYourRare
#RareDiseaseDay serves as a reminder of the progress made in understanding and treating rare diseases. We've seen remarkable advancements recently and we're moving towards a future where no disease is too rare to be ignored. Let's keep working towards a world where everyone, regardless of their condition, has access to life-changing treatments. Together, we can turn this day of awareness into a beacon of hope for millions around the globe. Read the whole article: https://lnkd.in/ecuMYJxY #RareDiseases #ClinicalTrials #ClinicalResearch #ShareYourColors #ShowYourRare
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#RareDiseaseDay serves as a reminder of the progress made in understanding and treating rare diseases. We've seen remarkable advancements recently and we're moving towards a future where no disease is too rare to be ignored. Let's keep working towards a world where everyone, regardless of their condition, has access to life-changing treatments. Together, we can turn this day of awareness into a beacon of hope for millions around the globe. Read the whole article: https://lnkd.in/ecuMYJxY #RareDiseases #ClinicalTrials #ClinicalResearch #ShareYourColors #ShowYourRare
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Treatment is available to manage symptoms of #polycythemiavera (PV) but they do not treat the underlying cause of the disease. That's why we are working to #SilenceRareDiseases. Learn more about PV and gene-silencing in our #ShowYourColors coloring book: https://bit.ly/3EB5ScV
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Inspirational Public Speaker & Nurse Coach at Ames Alchemy, LLC. Helping women in major life transitions to create their dream. WFPB advocate.
Who are my fellow zebras out there? Anyone with a rare disease… because in med school they’re taught when looking at symptoms (hearing hoofbeats) to find a diagnosis, look for horses (not the zebras that are more rare) first. This oftentimes makes those with rare diseases undiagnosed for many many years. I was left undiagnosed for many years, possibly decades. Multiple bronchitis and sinus infections later, I finally demanded and made appointments every other week for a year until they finally sent me to the right specialist to get the proper diagnoses of Common Variable Immunodeficiency (CVID - 1 in 50,000 people) along with the necessary treatment (antibody infusions) since I don’t produce many on my own. If you’re not getting the answers you need for symptoms unexplained, don’t be afraid to be persistent. Get the referrals to specialists who have greater knowledge to more rare diseases. Advocate for yourself. You deserve it. #rarediseaseday2024 #RareDiseaseDay #IDF #CVID #PID #zebrastrong #ShowYourStripes #immunedeficiency
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Inspirational Public Speaker & Nurse Coach at Ames Alchemy, LLC. Helping women in major life transitions to create their dream. WFPB advocate.
Who are my fellow zebras out there? Anyone with a rare disease… because in med school they’re taught when looking at symptoms (hearing hoofbeats) to find a diagnosis, look for horses (not the zebras that are more rare) first. This oftentimes makes those with rare diseases undiagnosed for many many years. I was left undiagnosed for many years, possibly decades. Multiple bronchitis and sinus infections later, I finally demanded and made appointments every other week for a year until they finally sent me to the right specialist to get the proper diagnoses of Common Variable Immunodeficiency (CVID - 1 in 50,000 people) along with the necessary treatment (antibody infusions) since I don’t produce many on my own. If you’re not getting the answers you need for symptoms unexplained, don’t be afraid to be persistent. Get the referrals to specialists who have greater knowledge to more rare diseases. Advocate for yourself. You deserve it. #rarediseaseday2024 #RareDiseaseDay #IDF #CVID #PID #zebrastrong #ShowYourStripes #immunedeficiency
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Today is #RareDiseaseDay. So many of Thrive SPC’s patients have rare diseases; let’s join together to help raise awareness! Learn more at https://lnkd.in/etGpncj. #PurposePassionPride #RareDiseaseDay #StrongerTogether
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February 29 is #RareDiseaseDay. This day is an opportunity to shine a light on diseases that many may never have heard of, and conditions often hard to treat for various reasons, including rare blinding eye diseases. Learn more about this day at www.rarediseaseday.org
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Shining a light on rare diseases today and every day. Let's raise awareness, show support, and foster hope for those facing the uncommon challenges of rare diseases. 💙🌍 #RareDiseaseDay #AwarenessMatters #Revubilling #medicalbillingagencies #medicalbillingservices #medicalcoding #medicalbillinginusa #Revenuecyclemanagement
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Join us for an insightful session with Dr. Sanjiv Haribhakti. He'll be debunking myths and sharing facts about Acid Peptic Disease. Don't miss out! 📚💬 #HealthTalk #AcidPepticDisease #AskTheDoctor #KaizenHospital
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Today is Rare Disease Day. Let's unite in solidarity to raise awareness for the millions worldwide facing the challenges of rare diseases. Every voice matters as we strive for understanding, support, and progress. Join the movement and shine a light on rare diseases today. Video: @rarediseasedayofficial #RareDiseases #RDD #raiseawareness #TogetherTekton #TektonResearch #ClinicalResearch #MakingLifeBetter
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